中国神经再生研究(英文版) ›› 2014, Vol. 9 ›› Issue (12): 1234-1240.doi: 10.4103/1673-5374.135332

• 原著:脊髓损伤修复保护与再生 • 上一篇    下一篇

来自土耳其脊柱裂患儿的生活自理及运动和社会功能评估

  

  • 收稿日期:2014-05-24 出版日期:2014-06-24 发布日期:2014-06-24

Assessment on self-care, mobility and social function of children with spina bifida in Turkey

Hulya Sirzai 1, Beril Dogu 2, Selamet Demir 2, Figen Yilmaz 2, Banu Kuran 2   

  1. 1 Ankara Physical Medicine and Rehabilitation Education and Research Hospital, Ankara, Turkey
    2 Department of Physical Medicine and Rehabilitation, Sisli Etfal Education and Research Hospital, Istanbul, Turkey
  • Received:2014-05-24 Online:2014-06-24 Published:2014-06-24
  • Contact: Hulya Sirzai, M.D., Ankara Physical Medicine and Rehabilitation Education and Research Hospital, Ankara, Turkey, hsirzai@gmail.com.

摘要:

为评估脊柱裂患儿的日常生活活动能力,我们应用儿童残疾评估清单评价了来自土耳其的28例有不同脊柱节段损伤、1-10岁患儿的自理能力和运动及社会功能。肌肉测试结果显示,13例患儿无运动能力;Hoofer 移动分类评估显示,16例患儿在无辅助器材的帮助下,无法移动;粗略量表评分显示,患儿自理能力、活动和社会功能均较正常儿童显著下降,且需要监护人更多的照顾。研究结果表明,脊柱损伤节段越低、肌力越好、活动独立性越强的脊柱裂患儿整体功能独立性越好。

关键词: 神经再生, 脊柱裂, 脊髓脊膜突出, 失能评估, 自理, 运动能力, 肌力, 儿童, 社会功能

Abstract:

The aim of the study was to investigate the functional performance in children with spina bifida, using the Pediatric Evaluation of Disability Inventory (PEDI) to look into capacity of twenty-eight children with spina bifida with lesions at different levels in different dimensions of self-care, mobility and social function. Mean age of the patients was 3.5 ± 2.3 (1–10) years. In the muscle test carried out, 13 patients (44.8%) had no movements including pelvic elevation in lower extremity muscles and they were at level 5. Sixteen patients (54%) were non-ambulatory according to the Hoofer ambulation classification. Raw and scale scores in the self-care, mobility and social function domains both in the functional skill scale and in the caregiver scale were found to be lower compared to the data of the normal population. A statistically significant correlation was observed in the self-care values of the Functional Skills Scales and the Caregiver Assistance Scale measurements, which was positive for age and negative for Functional Ambulation Scale and muscle test (P < 0.05). A positive relation was found between the Functional Skills Scales-mobility area and age while a negative relation was observed between Functional Ambulation Scale and muscle test (P < 0.005). A negative relation was also found between Caregiver Assistance Scale-mobility and Functional Ambulation Scale and muscle test (P < 0.005). In our study, the functional performance of the children was found to be low. Low-level lesions, encouraging muscular strength and independence in mobility are all very important factors for functional independence.

Key words: nerve regeneration, spina bifida, myelomeningocele, disability evalutat?on, self-care, mobility, muscular energy, child, social function, neural regeneration