中国神经再生研究(英文版)

中国神经再生研究(英文版) ›› 2018, Vol. 13 ›› Issue (11): 1907-1912.doi: 10.4103/1673-5374.239440

• 原著:脑损伤修复保护与再生 • 上一篇    下一篇

脑卒中患者首次发病1年内的症状体验和症状负担：横断面研究

  

  • 收稿日期:2018-05-26 出版日期:2018-11-15 发布日期:2018-11-15
  • 基金资助:

    复旦大学复星护理科研基金项目（FNF201611）

Symptom experience and symptom burden of patients following first-ever stroke within 1 year: a cross-sectional study

Dan Shi1, Zheng Li1, Jian Yang2, Bang-Zhong Liu3, Hui Xia1   

  1. 1 School of Nursing, Fudan University, Shanghai, China
    2 Xuhui District Center Hospital of Shanghai, Shanghai, China
    3 Zhongshan Hospital Affiliated to Fudan University, Shanghai, China
  • Received:2018-05-26 Online:2018-11-15 Published:2018-11-15
  • Contact: Zheng Li, LeeZ@fudan.edu.cn.
  • Supported by:

    This study was supported by the Fuxing Nursing Research Foundation of Fudan University of China, No. FNF201611.

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摘要：

患者从脑卒中发作过程会经历不同的症状，很少有研究去评估脑卒中患者不同维度症状的体验。大多数关于脑卒中的研究集中在抑郁、焦虑、偏瘫导致的一系列现象上，很少有研究评估卒中患者的多维症状和并发症。基于临床经验，作者基于临床实践，认为脑卒中患者在首次发病1年内有着较为严重的症状负担，故开展了此次首次脑卒中发病1年内的多维症状和并发症评价的研究。纳入2017年3至9月在上海市徐汇区中心医院康复科和上海阳光康复中心收治的230例脑卒中患者，使用自制的结构化问卷分析患者的多维症状体验和症状负担，并确定影响症状负担的因素。结果显示脑卒中患者出现的平均症状数量为11.7±3.5个，2/3的患者至少存在10个症状。其中单侧四肢无力发生率最高，活动受限最严重和最痛苦。缺乏自理能力、记忆力衰退、身体不平衡、情绪困扰、不能随意移动肢体、肩痛和反应迟缓是总症状负担评分的独立因素。试验结果为脑卒中患者的有效症状管理提供了客观的数据信息。试验已在ISRCTN注册，注册号ISRCTN18421629。

orcid:0000-0003-1151-8676(Zheng Li)

 

关键词: 脑卒中, 症状, 症状体验, 症状负担, 多维, 单侧肢体无力, 活动受限, 症状管理, 并发症, 神经再生

Abstract:

Symptoms that are multidimensional and concurrent should be assessed from different dimensions and managed together. Few studies have evaluated concurrent and multidimensional symptoms in patients with stroke. Most studies of stroke focused on dysfunctions and complications. We hypothesize that patients with stroke have a heavy symptom burden within 1 year. This study aimed to describe multidimensional and concurrent symptoms within 1 year after stroke. This study recruited 230 patients with stroke from the Rehabilitation Department of Xuhui District Center Hospital of Shanghai and the Shanghai Sunshine Rehabilitation Center in China from March to September 2017. The patients’ multidimensional symptom experience and symptom burden were analyzed using a self-made structured questionnaire and the influential factors for symptom burden were identified. The mean number of symptoms in patients with stroke was 11.7 ± 3.5. More than two thirds of the participants suffered from at least 10 co-occurring symptoms. Unilateral limb weakness had the highest prevalence and frequency. Participation restriction had the highest symptom dimensions of severity and distress. Lack of self-care ability (severity), memory deterioration (frequency), imbalance of body (distress), moodiness (distress), being unable to move limbs at will (distress), shoulder pain (distress), and slower response (frequency) were independent factors of the total symptom burden score. These findings can provide essential information for efficient symptom management of patients with stroke. This trial was registered with the ISRCTN registry (registration number: ISRCTN18421629).

Key words: nerve regeneration, stroke, burden, multidimensional, unilateral limb weakness, participation restriction, symptom management, concurrent symptoms, neural regeneration